When most of my friends were going to dance classes or sleepovers, I was by my mom’s side, holding her hand or making her toast. At six, I didn’t understand why she was always sick, losing weight, and in the hospital for weeks. My mom suffers from Crohn’s disease, a condition that causes inflammation in the digestive system. Some days it’s manageable, but other days, it’s debilitating. Over the years, she has experienced several relapses, and four years ago, she started a biologic medication that has been her saving grace. I’ve often accompanied her to her infusions, witnessing firsthand how much this treatment has improved her life.
Growing up with a parent who has Crohn’s taught me empathy, resilience, and the importance of understanding invisible illnesses. Crohn’s and colitis often go unseen — people look fine on the outside, but inside, they are struggling. This is why I started The Lotus Project. I wanted to raise awareness and support the 300,000 Canadians affected by these conditions. The Lotus Project isn’t just about raising funds for Crohn’s and Colitis Canada; it’s about giving a voice to those often silenced by their illness. My mom’s journey has been an inspiration, and I want to dedicate my time to this cause, to support those living with these diseases and work towards better research, treatment, and understanding.
I’ve also recently discovered that my grandmother faced similar health issues, reinforcing my belief that IBD might be genetic. This motivates me even more to help find better solutions for people like my mom, my grandmother, and the countless others living with these conditions.